When it rains, it pours.

JCitron

Trainzing since 12-2003
Sometimes it feels like we're being punished. This mess actually started last year and it hasn't ended yet.

My father turned 90 on December 1st and said to me that he wasn't going to live much longer. He was going blind, felt as if he was losing his mind, wasn't eating as much and had some odd behaviors including hallucinations. I had scheduled a neurology appointment but he never made it.

Shortly after Christmas, his legs swelled due to not elevating his legs as his GP directed and the blisters got infected and required treatment. After consulting his GP, I was told to take him to the emergency room (A&E) instead. He was admitted, much to his chagrin, where he stayed for a week. My brother and I drove 10 miles each way multiple times a day and saw him resist treatment and fight the nurses. He went as far as to throw his food, pull out intravenous needles, and refuse his normal medication. They released him and sent him to a nearby rest home and rehabilitation center to gain strength enough to come home, sadly he didn't make it.

While at the rest home, he contracted Covid-19, ended up back at another hospital for 5-days and returned to the rehabilitation center to continue to get strong enough to come home. Again, he refused to eat and threw his mediation around.

On February 22nd, he Facetimed with my sister, who was in the hospital due to an ongoing sepsis infection. She passed that afternoon. We had to tell him because if he came home, he would've looked for her and we would have to tell him anyway. After that, he closed his eyes and kept saying both girls are gone - we lost another sister in 2017, and that was it. He passed away on February 1st after not eating or drinking for the prior week.

It's been one horrible mess that never ends. My sister's ex-husband absconded shortly after their marriage. My niece, who just turned 18, had to sign the papers for her mother's care, can't retrieve her from the hospital because Ex-hubby is still the next of kin. Contacting Ex-hubby has been a fruitless effort so far, so my sister is stuck in limbo.

Let's hope after this elephant-sized hump is out of the way, things fall into a near-normal routine again.
 
I feel for you man. I'm 78 and since 2015, things have been up and down for both me and my "wife." (we can't get married because if we did she'd lose her medical coverage. Her husband was killed in the military). It's been cancer and heart attacks for both of us, not to mention a half dozen other maladies. We have to manage everything around trips to the doctor. I was Incapacitated in January 2020 with Histo Plasmosis. Spent 22 days in the hospital, then had to be under a doctor's care for a year and take some hideous tasting medicine three times a day for the whole year. In 2015 my nephew, first cousin, aunt, and my mother all passed on. That was a rough year. In December of that same year I had a massive heart attack. Luckily I was at the Hospital when I had it or I wouldn't be here. They had to bring me back with the paddles then rush me into emergency surgery. She and I have both had various types of cancer. Luckily so far we've made it through all of them without radiation or Chemotheraphy. But we're still here. Only through prayers and the will of God. Getting old ain't for sissies. And thank the Lord I chose to join the USAF and with my VA benefits I make do pretty good. I wish you all the best in the future, John. You'll be in my prayers ol' pal.
 
Best wishes, John. Since my quad bypass last March, I've been doing so-so well. Had a bout with Near-RSV (tests showed is wasn't) I've been improving but slowly. I have a friend I've known for 50 years who is in an Alzheimer's home right now. We visit, but it's touch and go as to whether he remembers us. Frustrating, to be sure. Hang in there.

Bill
 
I feel your pain, John. My father eventually passed at 99 years old after being house-bound for at least the last 10 years. Absolutely refused to even consider a retirement home which didn't make it any easier for those around him. Only his last week required hospitalization and even then the first day he was threatening to sue anyone and every one for kidnapping him. We were lucky in that he was fading so fast that that tantrum was over by the second day. The one who really had it hard was my sister who lives half way around the world and so had to endure all the drama via telephone and zoom calls.
As a famous song said, "what a drag it is getting old" but we all get there, some quicker than others, some sooner.
 
I know what you mean. My paternal grandmother at Christmastime in 2023 we couldn't visit her because she had COVID. Then one year ago today she broke her shoulder. And then in October of last year it was my turn to be in the hospital. I had pneumonia and spent nine days in the hospital. I also got out of the hospital with just two days to spare before my sister got married to her long-term boyfriend. I wasn't back to being 100% myself for the wedding, but I wasn't going to miss that for anything. Come hell or high water I wasn't going to miss my only sibling's wedding.
 
Sometimes it feels like we're being punished. This mess actually started last year and it hasn't ended yet.

My father turned 90 on December 1st and said to me that he wasn't going to live much longer. He was going blind, felt as if he was losing his mind, wasn't eating as much and had some odd behaviors including hallucinations. I had scheduled a neurology appointment but he never made it.

Shortly after Christmas, his legs swelled due to not elevating his legs as his GP directed and the blisters got infected and required treatment. After consulting his GP, I was told to take him to the emergency room (A&E) instead. He was admitted, much to his chagrin, where he stayed for a week. My brother and I drove 10 miles each way multiple times a day and saw him resist treatment and fight the nurses. He went as far as to throw his food, pull out intravenous needles, and refuse his normal medication. They released him and sent him to a nearby rest home and rehabilitation center to gain strength enough to come home, sadly he didn't make it.

While at the rest home, he contracted Covid-19, ended up back at another hospital for 5-days and returned to the rehabilitation center to continue to get strong enough to come home. Again, he refused to eat and threw his mediation around.

On February 22nd, he Facetimed with my sister, who was in the hospital due to an ongoing sepsis infection. She passed that afternoon. We had to tell him because if he came home, he would've looked for her and we would have to tell him anyway. After that, he closed his eyes and kept saying both girls are gone - we lost another sister in 2017, and that was it. He passed away on February 1st after not eating or drinking for the prior week.

It's been one horrible mess that never ends. My sister's ex-husband absconded shortly after their marriage. My niece, who just turned 18, had to sign the papers for her mother's care, can't retrieve her from the hospital because Ex-hubby is still the next of kin. Contacting Ex-hubby has been a fruitless effort so far, so my sister is stuck in limbo.

Let's hope after this elephant-sized hump is out of the way, things fall into a near-normal routine again.
Things like this can turn into your worst nightmare... I'll pray for you and the family during this difficult time.
 
I feel for you John. I feel strong empathy for you and what you're going through.
I have similar issues in my family life.

I lost my mom in '23, she was in constant pain for many different ailments. Caretaking her was the most painful thing for me.
Her deterioration was fast, keeping me busy with attending her needs, 24/7.

So now it's my Dad's turn. I've been watching his slow decline for the last 15 years or so, suspecting dementia onset for his problems.
My sister, who lives in California, south of me, has been in denial of both our parents health states, especially my Dad's.
She just throws accusatory tirades every time I attempt to discuss his mental health. I gave up trying, and now she has to deal only with my Dad' doctor, whom she can't deny.

Last week, he went in for his yearly checkup. Cognitive tests were run and he hit 24 which is in the entry spectrum score for Dementia.
Working with him is a daily pain in the ass, as he vacillates wildly from being fairly coherent to losing his shit and acting out verbally/physically.

He's due for his 1st neurological in about 9 months, but I'm sure my sister will be making things worse with her attitude.
My sister's life drama is one hell of an annoyance in my life, glad she lives far enough away that I don't have to deal with it all the time !
 
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I feel for you John. I feel strong empathy for you though.
I have similar issues in my family life.

I lost my mom in '23, she was in constant pain for many different ailments. Caretaking her was the most painful thing for me.
Her deterioration was fast, keeping me busy with attending her needs, 24/7.

So now it's my Dad's turn. I've been watching his slow decline for the last 15 years or so, suspecting dementia onset for his problems.
My sister, who lives in California, south of me, has been in denial of both our parents health states, especially my Dad's.
She just throws accusatory tirades every time I attempt to discuss his mental health. I gave up trying, and now she has to deal only with my Dad' doctor, whom she can't deny.

Last week, he went in for his yearly checkup. Cognitive tests were run and he hit 24 which is in the entry spectrum score for Dementia.
Working with him is a daily pain in the ass, as he vacillates wildly from being fairly coherent to losing his shit and acting out verbally/physically.

He's due for his 1st neurological in about 9 months, but I'm sure my sister will be making things worse with her attitude.
My sister's life drama is one hell of an annoyance in my life, glad she lives far enough away that I don't have to deal with it all the time !
I feel for you too. Both of my sisters never grew up and everything was about what they could get from their parents and both had substance abuse issues. They never helped us take care of our parents and only came around when they wanted something and my brother and I did what we could to take care of both parents.

Your description of your dad's dementia sounds very familiar. My father would be fine one day yet on others he'd lash out at us verbally, and in the end sometimes physically when we attempted to help him. With all that went on in the end, it was too much for him, and my sister's death hastened his as well.
 
Sorry to hear about your troubles John, hope things get better for you and your family . Dementia is awful. My mother was fortunate inasmuch that she died of a b12 deficiency before her hallucinations really kicked in , but it was starting to become frightening for her, she had an end of life plan in place where she stated that she only wanted pain relief once she fell really ill , of course they ignored it , but she insisted that she was ready to go and we insisted that her wishes should be followed .
once they stopped emergency treatment she soon slipped into a coma and died peacefully, she was 94, practically blind , extremely stooped and quite anorexic. I know death was a relief for her.
She was fortunate to have a good death on her terms, it's extremely distressing when it's not the case, sympathies to all who have been through this traumatic process .
 
Sorry to hear about your troubles John, hope things get better for you and your family . Dementia is awful. My mother was fortunate inasmuch that she died of a b12 deficiency before her hallucinations really kicked in , but it was starting to become frightening for her, she had an end of life plan in place where she stated that she only wanted pain relief once she fell really ill , of course they ignored it , but she insisted that she was ready to go and we insisted that her wishes should be followed .
once they stopped emergency treatment she soon slipped into a coma and died peacefully, she was 94, practically blind , extremely stooped and quite anorexic. I know death was a relief for her.
She was fortunate to have a good death on her terms, it's extremely distressing when it's not the case, sympathies to all who have been through this traumatic process .
Thank you, Dan. Things have to get better after this. My dad was lucky in that I had signed a DNR for him and the only treatment was to keep him comfortable. This order kept the emergency services from poking and prodding him as he slipped away. Dementia really is a horrible thing for anyone to go through.
 
I feel your pain, John. My father eventually passed at 99 years old after being house-bound for at least the last 10 years. Absolutely refused to even consider a retirement home which didn't make it any easier for those around him. Only his last week required hospitalization and even then the first day he was threatening to sue anyone and every one for kidnapping him. We were lucky in that he was fading so fast that that tantrum was over by the second day. The one who really had it hard was my sister who lives half way around the world and so had to endure all the drama via telephone and zoom calls.
As a famous song said, "what a drag it is getting old" but we all get there, some quicker than others, some sooner.
My dad was like that. He made no provisions for us financially. We were lucky that most of his expenses were covered by Medicare with only incidental things requiring out of pocket. He too threatened the staff every time they took blood and went as far as to accuse one of them of stabbing him 15 times. We don't have any immediate family outside of my area. In fact, my brother and I are it now. My cousins, well most, and my nephews visited him a few times. It took a decree and threats by my BIL to get my nephews to visit and I'm glad they visited their granddad.
 
That's terrible, I hope things get better for you And family John, if there is anything I have learned is never take life for granted, because your here one day, gone the next, shows how precious it is and to value everyday and tomorrow is not guaranteed to anyone.
 
Just returned from a trip to Arizona to see our first Granddaughter, a joyous occasion. Somewhat dampened about news of what my brother is going through medically and also a well-loved cousin. I talked to another cousin who is a sister of the one suffering medical issues, and she also mentioned our uncle, who is declining. All I could say is that we are getting to that age where it is happening all around us. Sad, but we lose those we love way too soon. My wife and I both lost our parents way too soon. Returning to find your post, it just reminds me of what is to come. My wife has an aunt with early dementia that we will be going north to help this spring. Best regards, John, and I hope things settle down and get worked out for you. It would be great if all of the family were supportive, but we all know that doesn't happen. Our prayers go with you.
 
Just returned from a trip to Arizona to see our first Granddaughter, a joyous occasion. Somewhat dampened about news of what my brother is going through medically and also a well-loved cousin. I talked to another cousin who is a sister of the one suffering medical issues, and she also mentioned our uncle, who is declining. All I could say is that we are getting to that age where it is happening all around us. Sad, but we lose those we love way too soon. My wife and I both lost our parents way too soon. Returning to find your post, it just reminds me of what is to come. My wife has an aunt with early dementia that we will be going north to help this spring. Best regards, John, and I hope things settle down and get worked out for you. It would be great if all of the family were supportive, but we all know that doesn't happen. Our prayers go with you.
I'm sorry you are going through this as well. My prayers go to you and your wife too.
 
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